Jun 19, 2026

One year ago, my AML relapsed.

Today, I'm grateful to share that my latest MRI is clear.

As I watch this scan, I'm reminded how fortunate I am. Research gave me options. My doctors gave me hope. And an incredible community carried me through some very difficult days.

Thank you to everyone who has already supported my fundraiser. Together, we've raised $20,000 for Blood Cancer United.

I'd love to reach $25,000 by June 30, and I'm just $5,000 away.

If my story has touched you, or if you believe everyone facing blood cancer deserves access to better treatments, support, and hope, I'd be honored by your donation.

Here's to more clear scans, more breakthroughs, and more years of life.

xoxo Lila

 

Apr 08, 2026

We passed $16,000! 💛

Sixteen years of living with blood cancer. That was the milestone I wanted to honor—and you helped me get there. I'm so grateful.

Today I leave for Bhutan. And now I'm setting a new goal: $25,000 by April 25th, the day I return home.

Let's see how far we can climb together before I land. Thank you for being part of this journey.

 

 

Mar 11, 2026

I was never supposed to see 55.

At 39, when I was diagnosed with AML, I was given only a 1 in 4 chance of surviving five years.

Yet next week, I turn 55.

16 years.
4 relapses.
3 stem cell transplants.

And somehow, I am still here.

Not by chance, but because Blood Cancer United has been relentless in supporting patients like me and funding the research that makes survival possible.

So to celebrate this milestone, I’m heading to Bhutan this April to climb to 16,000 feet.

My goal is to raise $16,000 so that more people living with blood cancer can celebrate more birthdays, reach more milestones, and have more moments with the people they love.

If this story moves you, I’m asking you to make a donation today.

And if you want to join the spirit of this milestone, consider a gift that includes 16 or 55.

Because every extra year of life is something worth climbing for. 💛

 

Jan 11, 2026

10 years ago today — January 11, 2017 — I stood on the summit of Kilimanjaro with an incredible team.
That climb changed me. It was about more than reaching the top—it was about honoring those we had lost to blood cancer and committing, in a very real way, to keep showing up for this cause.

Today, I laced up my boots and officially kicked off training for my next Climb 2 Cure adventure: Bhutan this April.

I’m climbing for everyone we’ve lost over the last ten years. For the families, the milestones missed, and the moments that should have lasted longer. And I’m climbing with hope—for better treatments, more time, and a future beyond blood cancer.

If you’re able, I’d love for you to join me.
My goal is to raise $16,000, and every donation—big or small—moves this mission forward.

Thank you for being part of this epic adventure 💛

 

Oct 29, 2025

Writing this from my clinic chair — Day 3 of 5.

Today’s post is a big shoutout to the incredible nurses who make days like this not just bearable, but better. 💉💜

They are the calm in the chaos — the ones who notice the little things, who remember your favorite blanket, who somehow make a fluorescent room feel a little warmer. They carry an impossible mix of compassion, strength, humor, and grace — and they do it every single day.

To all the nurses out there caring for patients like me: thank you for your steady hands and your kind hearts. You are the heartbeat of healing.

💜 2025: Day 2 of 5

I’m writing from my clinic chair on day 2 of a 5-day round of chemo — and I’m hopeful this will be my last. I feel incredibly lucky to have such great care at UCLA Health, but I know not everyone has the same access or support. Too many people face the weight of treatment and financial stress.

This post is for everyone sitting in a clinic today — waiting on labs, blood draws, or infusions. You’re not alone. 💜

This week, I’m also working toward my $1,000 goal (part of my larger $16,000 campaign) to help Blood Cancer United continue supporting patients and caregivers everywhere.
✨ Every gift matters. Help me reach $1K by Sunday

  

 

My hero 🩷
Joanna Kirkwood,
We love you, Lila! Thank you for being the amazing person you are ??????
Anonymous,
You’re an absolute inspiration Lila and have made an immeasurable impact for cancer survivors everywhere. So glad you believed me and happy to support you in the fight to beat cancer!
Abraham Chorbajian,
We love you 😘
Nancy & Danny Katz,
You go, girl! You continue to inspire Steve and me, with your commitment, strength and stamina. Ever onward and upward, Lila!
Carolyn and Steve Balling,
You are the best!! ♥️♥️
Ron paquette,
You are a warrior Lila. Your courage, positivity and strength are an inspiration.
Rick Lodato,
Sending love and strength. So much admiration for how you show your light to the world. Xxx
Toni,
Sending love to you, Lila!
Susan Gentile,
Keep climbing, friend! Onward and Upward! You are my role model!
Virginia Garner,
You are strength! You are brightness. You are inspiration. All love!
Tom Meyer,
Love you Lila! Val & Riva
Val & Riva,
You go, Lila! Keep inspiring all of us!
Carolyn & Steve Balling,
Woo hoo!! Bhutan!! So exciting! So inspired by you! Enjoy the training and the climb!!! ??
Laura Livant,
Go Lila! I am so happy and grateful for you!
Chris B,
Go Lila go!
Rob Knop,
You are my hero!!!
Irene,
You are an inspiration Lila! 💙
Danapel de Veer,
Lila you are such an inspiration - I'm so honored to have had the opportunity to conquer Kilimanjaro with you in the first Climb to Cure event <3!
Christy Madden,
You have inspired so many to dream and never give up on that dream. Even when life throws in some curveballs. So I am happy to be able to support you going after another goal.
Becky Ann Baker,
You are a rockstar, and we love you! ⭐️
Nancy & Danny Katz,
Hey Ho! You go!!! !! Happy birthday !!!!!
Val Riva Maia,
Happy 55 you are amazing we love u xoxn
Susan Oberman,
I love you and forever proud and inspired by you!
Anjuli Bedi,
Happy birthday Lila!
Emily Shaw,
Go Lila!
Laura Lifland,
Go Lila! I am so excited for you! Looking forward to following this great adventure. Thank you so much for all you do for BCU/LLS!!
Lara Hjortsberg,
Affection and healing thoughts to you, Amy. Look forward to seeing you back at Windrows soon.
Jane Hochman,
In memory of my Mom, Virgina Griffes Nelson and sister Diane Nelso Gold
Catherine Marcussen,
Sending much love, Lila. Thanks for sharing your journey.
Susan Gentile,
Get to the top of base camp in Bhutan!
Ken your hiking buddy,
Lila, you're a rockstar and my hero. Happy Summit! Love you lots! Aimee xox
Aimee Schoof,
Always an inspiration!
Faye Beresner,
You are a beast! Can’t wait to hear all about your adventure! Thanks for being such an inspiration!
Alison Sieh,
Congratulations!! Wish I could have gone with you
Marsh Jackson,
To Superwoman!!! You’ve done it again!!! &#x1f64c;&#x1f3fc;
Heather Burgett,
In awe of you and your resilience.
Lauren Rosenberg,
Lila Javan, you are a wonder and a hero to all who know you. Honored to be your friend. Much love!
Joanna Topetzes,
Perseverance is your middle name and you do it with a smile.
Stevie Schoof,
Love you, Lila!
Erica Bouchard Rabins,
Go Lila, go! You are amazing! Hope you are having a blast!
Anonymous,
You rock! Loving all the photos and miss you! Have a fabulous time.
Kirsten Meder,
Wish I was there with you but elated to celebrate you before during and after! Cheers to your superhuman strength and the team orbiting you!
Missy B,
Happy climbing!
Joanna Kirkwood,
So happy to join you on your victory climb in Bhutan!
Ron Paquette,
You rock!!!!!!
Natalie Handler,
Happy Birthday Lila!!!! Love you!
Mimy,
Happy Birthday, you deeply cherished and wildly impressive human!!! Love love love you!
Toni Anita Hull,
Happy birthday, Lila! ??
Holly Lowzik,
Keep Climbing Lila!!!!
Jesse Wolfe,
Happy Birthday, Si-star! ??????????
Heather B.,
You’re an inspiration Lila! Good luck in Bhutan and have a wonderful time! I can’t wait to hear all about it&#x1f495;
Sharon Mahoney,
You inspire me!
Kristina Desimone,
You inspire me, Lila! Sending much love
Anonymous,
Love you
Karen Mclaughlin,
Congratulations and Care, Lila!!
William Becker,
Go Lila!! You’ve climbed so many mountains — figuratively, mentally, and yes, even Kilimanjaro. Your strength, courage, and fire are unmatched. Even in the face of this fourth relapse, your big heart and passionate soul shine through. I’m so proud to live in a world that you’re in — one made brighter by your presence. Keep shining, and climbing. We’re all with you. ??
Holly Lowzik,

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