Jun 05, 2016

  Sami's Page

 

Hi Everybody!

I'm Sami Petrucciani and I had AML Leukemia.

It was terrible! I was eleven years old when I was diagnosed in 2005.

This is a picture of me at 11 years old starting treatment in St. Vincent's Children's Hospital.

 

 I spent over 9 months in the hospital at St. Vincent's and Riley Children's Hospitals. Luckily, my dad's bone marrow was a match, so I had a bone marrow transplant which cured me!  I lost my hair, was vomitting, had pneumonia and got a terrible case of graft versus host disease.  I missed 2 years of school and was homebound for over a year taking 10-20  different drugs daily to stay alive.  I had seizures, had to be in a wheelchair and was on IVs at home. I took lots of steroids and a drug called cyclosporin which helped control the graft versus host disease, but had lots of sides effects. It was awful!

Here is a picture of me after the bone marrow transplant and many medications. The drugs caused my body to swell, my skin to change color and extra hair to grow on my face. Pretty gross!

Yes, that was really me.

There were some great things that came out of this horrible experience. I got to meet wonderful nurses and doctors that took care of me and I got to watch a lot of videos and eat whatever I wanted, when I was able to eat.  I met new kids at the hospital that were going through the same thing I was experiencing.  My friends and family came together to help me and support my mom, dad and siblings. People sent me gifts, letters and cards,decorated my room and came to visit. I got to go to the American Girl Doll Store in Chicago and see a show there, and I got to meet Miley Cyrus. I even got a dog!!  His name is Bandit.  But most of all, I learned that I was really strong and that I could beat Leukemia!

I am really happy that I am healthy now.  I still think that it wasn't fair that I had to get cancer, but I am trying to move past that.

I am really excited about the Leuk-OUT and the chance to help other people suffering the way I did.  I hope the money we raise finds a cure and a treatment that doesn't have such terrible side effects.

 

This is a picture of my family and my dog, Bandit.

Please join me in supporting The Leukemia & Lymphoma Society (LLS) by making a donation to my fundraising campaign. Although I do not plan to swim, I will be saying hello and greeting people in the crowd throughout the fundraiser. Thanks for your support!

Please visit my Web site often and bring friends who would also like to donate!

On behalf of blood cancer patients everywhere I thank you for your support!

Love,

     Sami
 

 

 

Sorry we cannot make it to the event hope that you reach your goal.
jeremy borden,
👍💪
Dr Paul and Pam Kane,
You rock, Sami! We are so glad you are so strong and that we have had the pleasure of getting to know you and your whole family. We cannot make it to the Leuk-Out this year, so keep an eye on your dad for us while he is swimming and make sure he can still float.
The Lombardo Family,
Way to Go Sami! We are so Proud of you! xoxoxo Mom and Dad
Mom and Dad,
Sami, We have much respect and admiration for you fighting and winning against AML Leukemia. It's wonderful that you and your family dedicate your time and efforts to help others. We pray your life is filled with good health and happiness. Sincerely, Chris & Jane
Chris & Jane Miller,
So great to see how you have made the best of the situation, very inspiring! Keep it up - good luck!
David Kafoure,
Sami, Our family is particularly pleased to help support your very cleverly�titled fundraiser, the Leuk-Out. Our older daughter, Lauren, then age 3, on June 25 (How�s that for a coincidence?), 1980 was diagnoses with acute lymphocytic leukemia. She, too, had a rough run with it but after years of treatment, she finally could announce that she was leukemia �free. Lauren�s now 39-years old! Our family�s version of your Leuk-Out, called Lauren�s Friends Against Leukemia, helped sponsor a doctor who was conducting research on bone marrow transplants in the mid-1980s. His work was considered a high achievement and was implemented world-wide. Therefore he may well be one of those who helped make your bone marrow transplant the success it was. Great idea; keep it going! Robert Kotler, MD, FACS for the Kotler Family
Dr. Robert Koter, FACS,
You are an inspiration...!
Garth Schwomeyer,
Best of luck reaching your goals! Great job!
Scott Dorsey,

Support our Efforts

Donating for this event will be available from: Tuesday, May 17, 2016 12:00AM to Wednesday, August 24, 2016 05:00PM EST
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Fundraising Total

100%
Individual Goal
$2,300 of $1,000

Register Today

Registration for this event will be available from: Tuesday, May 17, 2016 02:21PM to Saturday, June 25, 2016 12:00AM EST

My Thanks To

  • Dr. Robert Koter, FACS
    $1000.00
  • The Lombardo Family
    $250.00
  • Scott Dorsey
    $250.00
  • Jeff Bozovich
    $100.00
  • Joe Williams
    $100.00
  • Dr Paul and Pam Kane
    $100.00
  • Kelly Prince
    $100.00
  • David Kafoure
    $60.00
  • Toula Oberlies
    $50.00
  • Chris & Jane Miller
    $50.00
  • Anonymous
    $50.00
  • Anonymous
    $25.00
  • Garth Schwomeyer
    $25.00
  • Mom and Dad
    $10.00
  • Misty Cope
    $5.00
  • jeremy borden
     
  • Valerie Hanna
     
  • Brad Bohn