My “wait and see” trial period came to an end on Friday. The months prior had been a great mental break from treatments and my lungs had time to do some healing! Unfortunately, the results of the PET scan has shown that the cancer has metastasized and spread a great deal throughout my body. It’s now in my bones, spleen, near kidneys, neck, cheek, etc..
So what comes next? Two biopsies (hopefully, next week). They’ll confirm whether this is still Hodgkins and a sample will al...so be sent to a clinical trial for CAR-T at the National Institute of Health. That trial offers my best shot. Depending on when I get into that study, I may have to start some chemo to reduce my HL symptoms (really high fevers, fatigue, etc...). Since chemo has never worked on me, I’m hoping I don’t have to do it again. But who knows? There’s always a first for everything... and my body does like to do the opposite of what’s expected!
Truthfully, I really wish I could share some exciting news instead of this, but I’ll just have to keep looking forward to when all this passes and I can do that one day. In the meantime, if you are looking to help me raise support to find cures for this nasty disease AND test your beach body - join my team for the Big Climb Philly May 19. It will be a great time and it’s just 46 flights of stairs at the FMC Tower. No biggie, right?!? If you want to join the team but are worried about the climb - don’t worry, I’ve got elevator access ;)
Join, donate, cheer for us, whatever works for you. I might be sidelined this year, but cancer is not going to stop me from doing what I can to make sure other individuals and families don’t go through this same nightmare.
Katie
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